$RARE

$16.75 +$0.67 (4.17%) Close

$RARE Overview Financial Statements SEC Filings Executives News Red Flags Capital Raising Ownership Insider Transactions Congressional Trades

Company Executives

$RARE Management Team

Dr. Eric Crombez

Executive Vice President

Chief Medical Officer

Age 52

Compensation $4.298M USD

Sex Male

Mr. Daniel Welch

Independent Chairman of the Board

Age 67

Compensation $500.1K USD

Sex Male

Dr. Emil Kakkis

President

Chief Executive Officer

Director

Age 64

Compensation $13.72M USD

Sex Male

Mr. Howard Horn

Chief Financial Officer

Executive Vice President

Corporate Strategy

Age 47

Compensation $4.296M USD

Sex Male

Mr. Dennis Huang

Executive Vice President

Chief Technical Operations Officer

Gene Therapy Operations

Age 60

Compensation $4.243M USD

Sex Male

Mr. Erik Harris

Executive Vice President

Chief Commercial Officer

Age 55

Compensation $4.296M USD

Sex Male

Mr. Eric Olson

Chief Business Officer

Executive Vice President

Age -

Compensation -

Sex Male

Ms. Karah Parschauer

Executive Vice President

Chief Legal Officer

Corporate Affairs

Age 47

Compensation $4.037M USD

Sex Female

Mr. John Pinion

Chief Quality Officer

Executive Vice President - Translational Sciences

Age 59

Compensation $4.130M USD

Sex Male

Name / Title	Age	Compensation	Sex
Dr. Eric Crombez Executive Vice President Chief Medical Officer	52	$4.298M USD	Male
Mr. Daniel Welch Independent Chairman of the Board	67	$500.1K USD	Male
Dr. Emil Kakkis President Chief Executive Officer Director	64	$13.72M USD	Male
Mr. Howard Horn Chief Financial Officer Executive Vice President Corporate Strategy	47	$4.296M USD	Male
Mr. Dennis Huang Executive Vice President Chief Technical Operations Officer Gene Therapy Operations	60	$4.243M USD	Male
Mr. Erik Harris Executive Vice President Chief Commercial Officer	55	$4.296M USD	Male
Mr. Eric Olson Chief Business Officer Executive Vice President	-	-	Male
Ms. Karah Parschauer Executive Vice President Chief Legal Officer Corporate Affairs	47	$4.037M USD	Female
Mr. John Pinion Chief Quality Officer Executive Vice President - Translational Sciences	59	$4.130M USD	Male

Board of Directors

From the proxy statement filed Mar 27, 2026

Directors

serving now

Independent

7 of 8

stated in the proxy

Average tenure

9.4 years

from year joined

CEO also chairs the board

Daniel G. Welch

Director	Age	On board	Independent	Committees	Other public boards	2025 pay
Emil D. Kakkis CEO	65	2010 16 years	Not independent	None stated	None stated	Paid as CEO
Shehnaaz Suliman	54	2019 7 years	Independent	None stated	10X Genomics, Inc.	$478,291
Daniel G. Welch Board chair	68	2015 11 years	Independent	None stated	Structure Therapeutics, Inc., Prothena Corporation plc	$508,541
Deborah Dunsire, M.D.	63	2017 9 years	Independent	None stated	McKesson Corporation	$475,041
Michael Narachi	66	2015 11 years	Independent	None stated	None stated	$490,041
Corsee D. Sanders, Ph.D.	69	2021 5 years	Independent	None stated	BeOne Medicines, Legend Biotech Corporation	$477,541
Matthew K. Fust	61	2014 12 years	Independent	None stated	Atara Biotherapeutics, Inc., Crinetics Pharmaceuticals, Inc., Neumora Therapeutics Inc.	$488,541
Amrit Ray, M.D.	53	2022 4 years	Independent	None stated	Fortrea Holdings Inc.	$472,541

Each director opens the passage of the proxy that names them. "Not stated" means the proxy does not say; it never means "no". Pay is the proxy's Director Compensation table; the CEO is paid as an executive.

No related-party transactions disclosed

The proxy filed Mar 27, 2026 states there were none.

Read it in the proxy

Comments

Company Executives

$RARE Management Team

Dr. Eric Crombez

Mr. Daniel Welch

Dr. Emil Kakkis

Mr. Howard Horn

Mr. Dennis Huang

Mr. Erik Harris

Mr. Eric Olson

Ms. Karah Parschauer

Mr. John Pinion

Board of Directors

Related-party transactions

No related-party transactions disclosed